Reading
- Caregiving and Loss: Family Needs, Professional Responses
Published by Hospice Foundation of America, 2001With approximately 25 million family caregivers in this country, one out of four households are providing care for a loved one. It is important for healthcare professionals to understand the unique needs of family caregivers and offer compassionate support. Featuring writings from 13 nationally recognized experts in the field of caregiving and loss, this book was developed in conjunction with HFA’s award-winning Living With Grief series. See sample chapters:
- What Caregivers Need From Doctors
- Eldercare Program [Model Workplace Iniative]
- Caregiver Fairs: Support in Action
- Family Caregiving Fact Sheet
- Hoping This Would Be Somone Else's Life
- Goals of Hospice Care
- Self-Care: The Path to Wholeness
PDF
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Grief, Loss, and Caregiving
PDF
- Hard Decisions in Hard Times: Helping Families Make Ethical Choices During Prolonged Illness
PDF
- Excerpts from "If I Am Not for Myself: Caring for Yourself as a Caregiver for Those Who Grieve" by James E. Miller
Order here or see more information. - How to Care for Aging Parents
By Virginia Morris
"Featured on Oprah and Good Morning America, winner of the Books for a Better Life Award, and hailed as an 'excellent resource' by the Family Caregiver Alliance...Compassionate and thorough, it is a caregiver's bible."
Workman Publishing Group
$18.95 - A Caregiver's
Challenge: Living, Loving, and Letting Go
By Maryann Schacht, MSW
"Many books address the needs of patients; few speak to caregivers. A Caregiver's Challenge combines personal experience and professional expertise to provide the knowledge and support that caregivers need."
$14.95 - Hospice Foundation of America produces various free informational caregiving brochures:
- Supporting Your Friend Through Illness
This brochure recognizes that the challenges brought about by terminal illness and loss affect not only the person experiencing it, but also family members, co-workers and all those touched by the situation. This brochure offers stories and advice for those who want to help but don't know what to say or do. - Caring for Someone Who Is Dying
This brochure offers insight into the dying process. Although the diseases, relationships and circumstances are different, a terminal illness involves similar issues and difficulties. This brochure offers some guidelines, provides a sense of understanding, and emphasizes the need for caregivers to take care of themselves.
- HFA’s July E-newsletter focuses on resources for family caregivers.
-
The Dying Process: A Guide for Caregivers (order
via this link)
This guide is intended for anyone who is caring for a dying person. It discusses both the physical symptoms of dying and the psychological issues that accompany the dying process. - Caring for Yourself While Helping a Loved One
(By Johnson & Johnson/Rosalynn Carter Institute Caregiver’s Program)
In this series of booklets, each booklet focuses on a specific caregiving issue, such as caring for a loved one with a disability; Alzheimer’s disease; cancer; mental illness, and more. -
Medicare Hospice Benefit
PDF
Trying to understand the nuances of rules and regulations can be overwhelming. This is the official government publication for Medicare hospice benefits.
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There are no mistakes, no coincidences. All events are blessings given to us to learn from.
--Dr. Elisabeth Kubler-Ross
We do not grow absolutely, chronologically. We grow sometimes in one dimension, and not in another; unevenly. We grow partially. We are relative. We are mature in one realm, childish in another. The past, present, and future mingle and pull us backward, forward, or fix us in the present. We are made up of layers, cells, constellations.
--Anais Nin